CHANGE IN PLANS

Thursday's CT scan has been changed to Tuesday. We hope to have the results, and a new game plan by tomorrow evening - Wednesday at the latest. Stay tuned!!!

STANDING TALL

Jaz is slowly regaining her strength, and has been practicing standing. Today during her rehab session she stood up for one whole second all by herself!!! That one second required more strength and courage than I could possibly describe. Standing leads to walking, walking leads to running, running leads to jumping, and jumping leads to dancing.... look out Broadway Jaz is back in business!!

COUNT DOWN

Jazmyn's next CT scan is scheduled for this Thursday, September 3rd. The scan will determine if the pneumatosis is gone and if it is o.k. to start feedings. All of this would put us at Health Bridge in about 2 weeks from today. Counting down the days!!

Thank you for all of the prayers - they are working!!! Jaz looks great and is improving every day!!!

GREAT NEW MOVES

Jazmyn's achievements during this last week have been amazing!

If you hold her hand she will use her own strength to sit up!!! She has been sitting up for periods of about 30 mins repeatedly throughout the day. Jaz can identify colors, shapes, and numbers by pointing to them. She picks up her toy's and loves to play. There are about six words she can say, including "dad" and "mom"!!! She shook her head "no", and signed "thank you" for the first time yesterday!!

Best of all... is when she reaches out to hold my hand, or to give the sweetest little hug you could ever imagine!!! Ohh... I just melt!

JAZMYN'S REFLECTION

Jazmyn loves to sing ALL the time. Shortly before she became ill I recorded her with our video camera singing... in the bathroom (we ALL know you can't beat the acoustics in there!). She had no idea I was standing outside the door while she belted out a song from the movie Mulan. The girl has got lungs!! It's not only impressive but quite funny as well. I've shared it with a few of the hospital staff that have come to know her well. It's been fun for them to hear what her voice actually sounds like. When I came across this video clip the other day the words struck me as so suitable for her current situation - "When will my reflection show who I am inside". The girl within this beautiful little body is slowly emerging little by little everyday. The Jazzy we all know and love IS in there. We delight in every little movement and smile. And we can't wait for the day that she will sing and dance again!!

I've also explained to Jaz that this bit of footage WILL be shown at her wedding = )

CRAZY SOCKS AND GREAT DOCS

In the 9 weeks Jaz has been in the hospital she has had many doctors. The majority have been good with the exception of a few that are GREAT. The few that stand out are those that have a passion for what they are doing. One in particular truly understands that bedside manor is as important as the meds you are giving the patient. Jaz likes to wear fun and funky socks. One day we challenged this Doc to wear funky socks as well (should be dress code for PEDS). He came through when he was happy to wear purple socks with hearts all over them. This is an EXCEPTIONAL Doc! He has been so good with Jazmyn. We are very grateful for this Doc and the others who have made our time here easier to endure. THANK YOU!!! THANK YOU!!!

WORKN HARD

Jazzy is making WONDERFUL improvements!!! She can sit up on her own for about 5-10 minutes! Her neck strength is better and she is able to turn her head while sitting up! Jaz is getting much more verbal. She says "yah" when she agrees! Her fine motor and cognitive skills are awakening. She can reach out and pick what she wants! Jaz has physical, occupational, and speech therapy everyday. We are so proud of her hard work! YOU GO GIRL!!!